Theo's Challenge

A Message from Theo's Parents:
Theo is one of the first and the only living person to be diagnosed with Batten CLN2 in Saskatchewan. With a population just over a million, that makes him one in a million
He will be the 6th child in Canada to receive treatment with Brineura.
We are told that treatment will stall progression of his loss of motor skills and language skills. We are also told that it may help control his seizures.
The other children receiving treatment are in BC, Manitoba and Ontario. I’m very pleased that our province of a million is also able to offer the help our son needs.
Theo est un des premiers enfants en Saskatchewan et le seul vivant à être diagnostiqué par la maladie Batten CLN2. La population étant un peu plus qu’un million d’habitants, ça fait de lui «one in a million».
Il sera le 6e enfant au Canada à recevoir le traitement Brineura.
On nous dit que le remplacement des enzymes devrait ralentir sinon stopper le progrès de cette maladie quant à sa motricité globale et son langage. Il est possible que ça aide à mieux contrôler ses convulsions.
Les autres enfants qui reçoivent le traitement sont résidents de la C-B, le Manitoba et l’Ontario. Je suis ravie que notre province ayant une population d’un million puisse offrir le traitement dont notre fils a besoin.
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